tweet tweet! is this thing on?

Do you Twitter?

How do you use it?

I tweet. If you don’t–or don’t want to–you might could use to stop reading at this point. (oh stop.  I don’t talk like that, I just WRITE like that. sometimes. It’s my husband’s fault.  He’s from the land of “might-could”, you know.).

I tweet less now than I used to, but I still tweet.  There is SO MUCH to take in on Twitter.  I use TweetDeck–anybody else?  And I use the columns function to follow some pretty important topics (to me).

Everyone uses Twitter differently.  Very differently.  How I use Twitter is not how anyone else should use Twitter.  I don’t judge or mean to suggest.  But I’m always curious as to what topics other parents follow on Twitter.  So, here is a list of topics I follow on Twitter:

1. the hashtag of my kid’s disease

2.  the hashtag with “fuck” my kid’s disease (i.e. #fuckSMA) (we are a passionate group)

3. #Coyotes.  Because I am an ardent follower of my hometown hockey team.  They rock my casbah.

4.  #Canucks.  Because nationality be damned I am a lover of my Vancouver Canucks and nobody can stop me.  Not even Roberto Luongo.  (rimshot)

5.  #RedWings  Because I really REALLY like the watching the Detroit Red Wings but nobody has to know because my TweetDeck columns are not publicized.  What?  Now wait a minute…  No!  NO!  YOU show me another team with The Perfect Human at the helm and THEN we can argue this one!!

6.  Gene Therapy.  Because there are so many clinical trials featuring gene therapy.  I have so  many loved ones dealing with Parkinson’s, diabetes, and muscular dystrophy that following this hashtag has proven valuable over and over again.  Gene therapy is where it’s at, folks.

7. #stemcell.  Amazing work being done in regards to stem cell research and therapy.  Even if the work won’t save my own kids, the science is still amazeballs.  I’m hooked.

8.  #meatlessmonday Because yesterday was Monday.  Also I don’t eat meat.  Also I need meatless recipes.  A girl’s gotta eat, you know.

9. #twintuesday  Because obviously.

10.  #raredisease Because it’s wonderful to see what research and fundraisers are happening in the broad community of rare diseases.

11.  #specialneeds  Because it’s amazing to connect with other tweeters and bloggers who are raising non-typical children, if you’re a parent of a non-typical child.

12.  #blogher11  Because I’m going.  Are you?  Please say yes.  I want to meet as many people there as I can!

My TweetDeck might very well be the hardest working of all my technologies.  What say YOU, dear readers?


Cassandra can be found on Twitter @aclevergirl.  Learn more about her family’s unique challenges and why they have hope for a cure for muscular dystrophy at Byrds for a Cure.


  1. drhoctor2 says:

    Umm, hi ya.. I saw you were looking for a Blogher pass on twitter..heres’ this, then, @punkymama Anyone want to be Jo-Ann Rogan at Blog her. I will sell you my pass for 1/3 what I paid….
    She’s legit,. Medical bills ate up her blogher budget so, it’s a good deal , eh ?

    1. Cassandra says:

      Thank you! I did connect with her and we’re working on an arrangement. Hallelujah for the twitters! :)